The purpose of this particular blog is give a boost to all those out there who are facing the dilemma of illness. Do not give up!
My son, Sam and his wife, Lexi, had a baby boy. At the age of two it was quite evident that his head was larger than normal. We thought maybe water on the brain. The doctor’s diagnoses was much more devastating. Cancer. Brain Cancer. It was in the brain of our two year old grandson. Michael was facing a grim battle.
I better write this right away or you will not read on. Michael survives.
My son and daughter-in-law live in Tampa. They took Michael to St. Joseph’s Hospital where they attempted to enter the brain and remove the cancer. They could not get it all out. Devastation descended on the family. When you hit the wall it takes your breath away. Fortunately my son took the reins. He called every doctor he could find that could handle brain cancer in a two year old. There was a very limited number of doctors who fit this category. Finally there was Doctor Finley, working out of New York University Hospital who accepted Michael as a patient.
The Kids went up by rail. Flying would put too much pressure on the brain. Mike stayed at the hospital and went through five chemotherapy sessions. He had stem cell procedures. All through this ordeal the family received support from the doctors, nurses and other hospital personnel. These people are unbelievable to their dedication and ability to handle such terrifying events. Michael was released from the hospital just after 9-11, the hospital is located near this disaster and treated many of the people who went through that ordeal.
Today Michael fourteen. The amazing thing is the ability of the brain to reboot itself. Michael plays baseball and does well in school. His ability to comprehend and learn was not affected. His balance was but has seemed to adjust. A small decree of fortune is that he was so young that he does not seem to remember a lot of that time. There is a good probability that he will lead a normal life.
I wrote this under heavy duress. But like I mentioned in the beginning if this gets one person to get through the day or helps someone adjust their mental attitude to going on than it was worth it. Of the twenty odd children who were part of the experiment at that time Michael and two others survived and that is why I consider him a miracle.
I saw Michael yesterday. His mental process are on line. His physical abilities are okay. If it were not for a scar where they opened his head to remove cancer and a portal near his belly button you would not know how close he came to dying. The scar is covered by hair but hair does not cover it completely and I can spot the incision. Somehow Michael survived, is it a miracle? You decide. The success rate we were told was under a twenty percent chance of survival. There were no stats on how incapacitated he would be. Yet he survived and there appears no complications. Michael goes twice a year for a checkup. So far so good. I will brief you every once in a while. But believe in miracles and fight. To all you out there in a similar situation I pray for you and know what you are going through. Take each day, one day at a time, and live it as well as you can.
Michael is now at Berkley Prep School in Tampa heading for the high school. He is learning Chinese and is a typical kid. My son puts effort into working with people who have had similar situations and is on the web at Sam Wax at Easy Mortgage. Com. Michael is now into golf and walks the course in Tampa. Michael is going in the next few days to the Dominican Republic. He is assigned with forty other students from the school to go and do good.
Cancer is a bitch. Michael’s mother, Lexi is now battling colon cancer. Her colon has been removed and her level is getting lower. But chemo now is the main goal of her day to day life. Her head is bald and she wears wigs. I wonder if cancer can run in families. I wonder if there is a gene in the makeup that fights cancer. Lexi is tough and she is a wonderful daughter-in-law. I pray one day this disease will be a thing of the past. I will let you know how she is doing in the future. Had lunch with her yesterday. She is a positive person and takes it one day at a time. Prayers are asked for.
Update: All is well. Everyone holding their own.
Yesterday Michael had exploratory surgery. The doctor took a biopsy of a mass in his abdomen. Secondary cancer is a problem. The doctor feels this one is benign. We feel as if we ducked the bullet. Five hours on the operating table. But was there a choice?
Saw Lexi yesterday and she is recuperating from her surgery.
It is ironic but both my daughter-in-law and my grandson will have the same scar.
A kudo to MacDonald house which put Sam up.
There are a lot of good corporations out there. A lot of good people.
Now the update: Lexi died. My son is a widower and my Grandson is hurting from the loss of his mom. The page is turned and now reality is sinking in.
Frank at 87 says he misses his daughter. What do you say to a man whose mind is slipping and yet realizes that some one is gone?
It has been a few months and life goes on. We miss our Lexi, but she was a great influence on all. There is a mental pain. A stab that life is to short. A glimmer of how useless possessions are. We accumulate a lot of stuff and it means little. Family and friends that is what matters and the circle moves. People are born and people die. That is life. It is both awesome and cruel. I now think of my legacy and what I will leave behind. But there is a spark which says do it now. Do good deeds and do them often.